Thanks to everyone who generously supported our fundraising drive to buy more Icares for the Icare lending library at Duke Eye Center! We just received an email from Dr. Sharon Freedman:
I am happy to report that three boxes of Icare units have arrived and are sitting in my desk, waiting to be opened and put into use with the lending library!
Special thanks to Mr. John Floyd, the General Manager of Icare USA, and Dr. Sharon Freedman, for making the lending library a succes, and for helping so many other families to control their kid's glaucoma.
For this year's Winter Break, I was fortunate to go to Park City, and have daily lessons with the National Ability Center. I’m terrified of skiing down a steep slope, and as a beginner, all slopes seemed steep to me. The first day, I stayed on the magic carpet for most of class, and the slow pace felt good. The 2nd day, I was on the beginner chair, and then a more advanced chair. I went on a short blue run, and was not sure I could do it. I kept pushing forward. On the 3rd day, my instructor Eric said his mission was to get me to trust my equipment over the next few days, and to stop being afraid. No fear allowed!
Our Valentine's Party last weekend was lots of fun! We had fun decorating cookies and making Valentine’s cards, and several other arts and crafts projects. I also taught some of the kids how to make duct tape roses and origami hearts. It was awesome to see the people who came get to know one another.
Thanks to your support of Saving Kids’ Sight, thirteen new Icare tonometers were loaned out to families this year, to help prevent glaucoma from stealing their child’s sight. Measuring their child’s eye pressure three times a day and reporting back to Dr. Sharon Freedman at Duke Eye Center, not only helps to manage their child’s advanced glaucoma, but is also helping hundreds of ophthalmologists around the world to better understand and treat childhood glaucoma.
Please consider a gift to support our goals for 2017. We have a generous donor who will match all donations from now through December 31st up to a total of $10,000. Donations can be made through our Fiscal Sponsor, Residence Partners NFP, by clicking the DONATE! button above.
In 2017, with your support, we can help more children who are battling glaucoma. We currently have the opportunity to purchase refurbished units at half price ($1,995 instead of $3,995). Please help us to purchase 12 more Icares for beating childhood glaucoma in 2017.
Thanks so much for your generous support,
Dr. Sharon Freedman, shows Karen Crozier how to use a tonometer with her son Quinn Crozier at the Duke Eye Center. Sarah Smale raised money to buy a library of tonometers. The instruments, which are used to check glaucoma pressures, will be loaned out to other patients to bring home.
Shawn Rocco/Duke Health
A few months ago, I posted some of the art I created, using watercolor pencils and pastels I got for Christmas. Since then, I have experiemtned with many styles, and got lots of practice during my fundraising art-a-thon. Recently, I have enjoyed drawing anime and My Little Pony. Follow me on Deviant Art and Instagram.
Picnic in the Park June 30, 2016 by SarahRoseS
On June 18th, the weather turned cold and gloomy. Heavy rain lashed down, and I hosted a picnic in the park. Not the best timing. I rented a small building on the edge of the playground in a local park, where I brought crafts and food for everyone.
The playground outside had three climbing rocks, swings, spinning ropes, and lots of space to play in. After most of the people had arrived, three other kids and I decided to go outside to play hide and seek, even though it was still raining on-and-off. A small gathering of parents and kids ate, talked, made beautiful art, walked around the park, and played outside.
My picnic in the park was a definite success, and it was tons of fun to run!
Last Sunday, I spent the whole day doing art to raise money for Saving Kids' Sight. I loved coming up with ideas, and putting them to paper, for a great cause. The Art-A-Thon was so successful that I continued to draw through the week, adding some whimsical subjects as well. Over $900 has been raised, which is awesome!
I recently visited Great Wolf Lodge with one of my friends, Julie. It was Julie's first time, and my third. We stayed overnight in a very cozy Kid’s Kabin, with our own TV and cute critters painted on the walls
In the water park, there were tons of totally awesome water slides for us to ride. I wore my old glasses, because my new glasses could get ruined from the chlorine in the water. I didn’t want to use my prescription swim goggles, because there isn't really any swimming involved. I would look weird and out of place wearing them. Contact lenses might have worked, but I don't have any. Going without correction wasn't an option, because then I wouldn’t be able to see at all. My old glasses were the best option, and they worked out really well.
The first time that I went to Great Wolf Lodge, I was scared of the Howling Tornado ride because I thought it was the steep green thing that takes the rafts up (in above picture), so I didn’t go on it. The next time I went to Great Wolf Lodge, the friend I went with persuaded me to go, eventually, and when I did, I had a blast! Now it’s my favorite ride by far.
Julie and I played mini golf where our only light was UV light, so everything looked like it was glowing; it made it hard to see, though. Julie was very helpful, and made sure that I knew where everything was.
At night, we curled up in our bunks, turned on the TV, and proceeded to paint our nails. Painting my nails is hard, especially because it’s difficult to see, but with practice, I’ve gotten better. Full of smiles, we returned home the next day, giggling and chatting, for we had the time of our lives.
The goal of my blog is to increase awareness of childhood glaucoma and other eye diseases, and to unite kids like me living with visual impairment.