SAVING KIDS' SIGHT
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About Glaucoma

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Glaucoma is the leading cause of preventable blindness
​in the world

The American Association for Pediatric Ophthalmology and Strabismus (AAPOS) describes glaucoma as a group of diseases characterized by damage to the optic nerve that often occurs when the eye pressure is too high. This causes optic nerve damage and can result in severe vision loss. People think of glaucoma as an older adult's disease, but even newborn babies can have it.  Infants and children with glaucoma typically have different signs and symptoms than adults.
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Signs and symptoms of childhood glaucoma:
  • Light sensitivity
  • Large eyes, or one eye larger than the other
  • Watery eyes
  • Cloudiness in eyes

Prognosis
With early detection and prompt, appropriate treatment, many children with glaucoma can have good vision, even normal or near normal vision (good enough to care for themselves, read, or even drive a car). If not treated promptly or appropriately, or if the child’s condition is very complex, significant vision loss and blindness can occur. Effective treatment requires specialized care, and finding a pediatric glaucoma doctor often requires travel to a distant eye care center.

Management
Management of childhood glaucoma often requires multiple procedures and examinations under anesthesia. Lifelong follow-up care is vital. Parents and guardians share a major responsibility in the daily management of their child’s glaucoma and having a child with glaucoma affects the family in many ways. The best chance for optimal outcomes in childhood glaucoma is if families, doctors, teachers, vision specialists, etc. – the whole “team” of providers – work together toward a brighter future for children with glaucoma.
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“Caring for children with glaucoma is a challenge and a true privilege. Although it really does “take a village” with experience, dedication, and persistence by the physician, family and many supporting “players”, these children can have a brighter future and the opportunities in life that they deserve.”
– Sharon Freedman, pediatric glaucoma specialist, Duke Eye Center.

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Resources

About Childhood Glaucoma
Support for Families
  • How to do eye drops
  • How to choose glasses
  • Getting a new scleral shell​​
Educational Resources
Medical Resources

Kids' Stories

   Anna's Story

Callie's Story
Cole's Story

​   Jordan's Story

Luke's Story
Madelynn's Story
Quinn's Story

   Wesley's Story

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  • Home
  • Who We Are
    • Advisory Committee
  • What We Do
    • Icare Library
    • Gatherings
    • Family Support
    • Kids' Stories
  • Glaucoma
    • About Glaucoma
    • Resources
    • Faces of Glaucoma
  • Get Involved
    • Donate
    • Fundraise
  • Events